Bad day. Bad day. Bad day. Bad day. Bad day. Bad day. Bad day. Bad day.

This image was the most pleasant Louie looked all day. A restless sleep led to a restless day: napping once, throwing up twice and mumbling the words 'bad day' throughout. His general unsettlement was persistent and early afternoon he said "go somewhere". So we went in silence. I stopped to pick up one of his prescriptions during our futile drive. This particular drug is so highly regulated that it must be flown in and I'm required to take two surveys for each refill promising he won't have a baby (he's 10!), yet it's okay for him to ingest. Bad days are hard to watch and staying positive can be burdensome. I wish I could accept these days for face value vs. always contemplating if they are from the pills (he takes up to 10 a day) or the disease or just general exhaustion. For now, I'll imagine his bad days mean the disease is taking a swift beating. That idea is enough to keep us going another day.